ADD-vance is a dedicated group of professionals, who also happen to be parents of children affected by ADHD and/ or Autism. Their mission is to support the families of children affected by these conditions and the professionals involved in their care.
CommonSENse offers a forum for parents or carers of special needs children to discuss difficulties and share solutions by using a straightforward and no-nonsense approach. It also offers positive support to anyone going through a difficult period. It is open to parents with children of any age and whatever the special need.
Herts Parent Carers Involvement (HPCI)
HPCI is an independent parent carer led organisation which aims to improve services for children and young people aged 0-25 years who have special educational needs and/or disabilities. They do this by ensuring that family voices are heard by service planners and decision makers.
Up on Downs
Up on Downs is a parent run organisation which supports families of children with Down’s Syndrome which welcomes parents and professionals from all over Hertfordshire. They support other parents by sharing information and creating opportunities for families to socialise and learn together. They support children by arranging specific activities and by working with other agencies to increase awareness of Down’s Syndrome and improve the opportunities available to people with the condition.
The main focus of the service is to work with children, young people and their families to help them find support locally, to reduce the amount of caring young carers have to do. Their staff visit young carers and their families in their homes so that they can understand the caring situation and find out what sort of help the family might need. They then work with other organisations like Hertfordshire County Council to find support from local services to reduce the amount of caring the young person has to do.
Carers in Hertfordshire
A local, independent organisation offering support and signposting for carers.
Telephone: 01992 586 959
Angels Support Group
Angels is a parent led charity set up in North Hertfordshire to support parents and carers of children with Attention Deficit Hyperactivity Disorder (ADHD) and/or Autistic Spectrum Condition (ASC).
Headway Hertfordshire works closely with people who have a brain injury, their carers and families. They aim to reduce social isolation, improve health and wellbeing and give carers a break. They also aim to raise awareness with local groups, professionals, statutory authorities, charities and others through presentations, talks and face to face meetings.
The HUB offers information and support for parents and carers of disabled children and young people aged 0-19 in Hertfordshire. The HUB provides free and impartial support over the phone, by email or face-to-face (including home visits).
The Regency Training Foundation
The Regency Training Foundation delivers short self-development training courses to disadvantaged adults and vulnerable young people in Bedfordshire, Hertfordshire and London. They work with adults aged 18 plus who have; physical, sensory and learning disabilities, mental health challenges, people from ethnic minorities, lone parents, and unpaid carers. More info on referrals can be found on their website.
Young Carers in Herts
Their young carers service works with young carers aged 18 and under. The main focus of the service is to work with children, young people and their families to help them find support locally to reduce the amount of caring young carers have to do.
Age UK Dacorum
Age UK Dacorum offers support to people living in the Borough who give unpaid care to a relative, neighbour or friend, where one of them is over 50.